Finding and coordinating an SMA care team in Nigeria
A practical referral and appointment framework for families navigating several clinics, providers, and care priorities.
Read the guideA Nigerian foundation. A shared hope.
Every family deserves
understanding.
Every life, possibility.
Spinal muscular atrophy can change a family’s world. Together, we can make that world more informed, more supportive, and less lonely.
Rooted in lived experience. Guided by dignity.
A family’s experience. A purpose beyond one home.
A place to beginWherever you are in your journey.
More than awareness
Knowledge brings clarity.
Connection brings hope.
SMA Hope Foundation Nigeria grew from our family’s experience with Kamsi and Kachi. We know how much can sit behind a diagnosis: questions, decisions, daily care, and love.
We’re building a place where families can find clear information, where communities can learn to offer practical support, and where people living with SMA are seen in their fullness.
Get to know the foundationThe knowledge hub
Clear answers.
Practical next steps.
Thoughtful guides for the realities of life with SMA in Nigeria.
Explore all guidesHow to support a family living with SMA
Useful help for relatives, friends, churches, and community groups—from reliable practical support to respectful storytelling.
Read the guideSchool and SMA: building a practical inclusion plan
A conversation guide for families and teachers, covering access, participation, privacy, and day-to-day arrangements.
Read the guideOur commitment
People first.
Always.
Children and adults living with SMA have interests, ambitions, relationships, and futures. Our work begins with their dignity, and with the families who stand beside them.
How we build trust
The story behind the mission
When Every
Breath Matters.
A family’s story of SMA, care, and the responsibility of keeping hope alive. Discover the book that gives deeper context to our foundation’s work.
Explore the book