Page background subtle texture
Privacy Policy background

Privacy Policy

How we collect, use, protect, and manage your personal information.

Last updated: March 17, 2026

SMA Hope Foundation Nigeria ("SMA Hope", "we", "us", or "our") is committed to protecting your privacy.

This Privacy Policy explains how we collect, use, disclose, and protect information when you use our website, make donations, purchase resources, submit forms, or otherwise interact with us.

This policy is intended to align with applicable data protection obligations, including the Nigeria Data Protection Act (NDPA) 2023 and, where applicable, other international privacy requirements.


Who We Are

SMA Hope Foundation Nigeria is a nonprofit organization focused on raising awareness about Spinal Muscular Atrophy (SMA), supporting families, and mobilizing advocacy and charitable support.

If you have any privacy questions, contact us at help@smahope.org.

Legal Bases for Processing

Depending on the context, we process personal data on one or more of the following legal bases:

  • Your consent.
  • Performance of a contract or transaction with you.
  • Compliance with legal obligations.
  • Our legitimate interests, such as service security, fraud prevention, and program improvement.

Information We Collect

Information you provide directly:

  • Contact details such as name, email address, phone number, and country.
  • Messages, inquiries, and support requests submitted through forms or email.
  • Donation-related details (for example, donation amount and transaction reference).
  • Book or resource purchase details, where available through our checkout flow.
  • Any other information you choose to submit in forms or correspondence.

Information collected automatically:

  • Device and browser metadata, IP address, language, and approximate location.
  • Pages viewed, interaction events, referral URLs, and session information.
  • Cookie identifiers and similar technologies, subject to your preferences where required.

How We Use Information

  • Respond to inquiries, requests, and support needs.
  • Process donations and other transactions.
  • Provide receipts, confirmations, and service communications.
  • Operate, maintain, and improve the website and our programs.
  • Detect fraud, abuse, security incidents, and misuse.
  • Comply with legal, accounting, tax, and regulatory obligations.
  • Send campaign updates and newsletters where you have opted in or where otherwise permitted.

How We Share Information

We do not sell personal data.

We may share information with:

  • Payment processors and financial service providers (including Stripe and Paystack).
  • Technology service providers that host, secure, or support our website and communications.
  • Professional advisers, auditors, or regulators where required.
  • Law enforcement or authorities where disclosure is legally required.

Third-party providers process data under their own privacy notices and terms. We encourage you to review those notices before submitting payment or sensitive information.

International Transfers

Some service providers may process data outside Nigeria. Where international transfers occur, we take reasonable steps to ensure safeguards are in place consistent with applicable data protection rules.

Your Privacy Rights

Subject to applicable law, you may have the right to:

  • Request access to the personal data we hold about you.
  • Request correction or update of inaccurate or incomplete data.
  • Request deletion of personal data in certain circumstances.
  • Object to or request restriction of certain processing.
  • Withdraw consent where processing is based on consent.
  • Request portability of data where applicable.
  • Complain to a relevant data protection regulator.

To exercise your rights, email help@smahope.org. We may request verification before fulfilling a request.

Data Retention

We retain personal data for as long as necessary to fulfill the purposes described in this policy, including legal, accounting, tax, reporting, and safeguarding obligations. Retention periods vary by record type and legal requirements.

Data Security

We apply technical and organizational safeguards designed to protect personal information from unauthorized access, misuse, loss, disclosure, or alteration. No online system is completely secure, so we cannot guarantee absolute security.

Cookies

We use cookies and similar technologies to keep the website functioning, remember preferences, and understand usage patterns.

Cookie categories:

  • Essential cookies: required for core site and security functionality.
  • Analytics/performance cookies: help us understand traffic and improve content.
  • Preference cookies: remember user settings where available.

You can accept or reject optional cookies via our cookie notice where presented. You may also manage cookies through browser settings. Disabling certain cookies may affect parts of site functionality.

Children's Privacy

Our website is intended for general audiences and not directed to children for independent use. Where information related to children is shared in support or medical contexts, this is expected to be provided by parents, guardians, or authorized representatives.

Third-Party Links

Our website may link to third-party websites or services. We are not responsible for their privacy practices, content, or security. Review third-party policies before sharing personal information.


Changes to This Policy

We may update this Privacy Policy from time to time to reflect legal, technical, or operational changes. Updates are effective when posted on this page, and the "Last updated" date will be revised.

Contact Us

If you have questions, requests, or complaints regarding this policy, contact:

SMA Hope Foundation Nigeria
Email: help@smahope.org
Website: https://smahope.org

Help us build understanding, strengthen support, and carry this mission forward.

Whether you are here to learn, to support, to seek help, or to understand what SMA really means for families, you are welcome here.

Be part of the mission

Join our email list for updates, awareness resources, and ways to stand with families affected by SMA.